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ALZHEIMER’S
AND RELATED DISORDERS SOCIETY OF INDIA (ARDSI) Madavana Temple Road, Vennala P.O, Palarivattom, Cochin-682028, Kerala, India Ph: 0484-2808088, Help line: 9846198471, 9846198786 E-mail: ucds@rediffmail.com, alzheimr@md2.vsnl.net.in, Web: www.alzheimerindia.in |
COMPREHENSIVE
DEMENTIA CARE PROGRAMME: SEPTEMBER 2004 TO AUGUST 2006 IN COCHIN, KERALA,
INDIA (FUNDED BY SIR DORABJI TATA TRUST, MUMBAI 400001) |
| INTRODUCTION Alzheimer’s and Related Disorders Society of India, with the financial aid of SIR DORABJI TATA TRUST launched a new project in the name “Comprehensive Dementia Care Program” (CDCP) in Cochin Corporation with an objective of making Cochin as the first “dementia friendly city “ in India. The CDCP commenced on 01 September 2004. Prior to this Program, another Project “Urban Community Dementia Services” funded by Help Age India was functional. As the preliminary step to launch the program, a team of officials was selected following the guide lines of Tata Trust, the funding agency and ARDSI. The office of the project and the Dementia Care Center is located in the beautiful campus of Palarivattom Community Development Trust (PCDT), Aalinchuvadu, Palarivattom, Cochin -682028. |
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| AIM | |
| » | To create awareness about dementia. |
| » | To identify cases of dementia at the early stage. |
| » | To impart training to community health workers |
| » | To provide day care and community care services. |
| » | To undertake study on existing care arrangements. |
 Visit to the Dementia Care Center by Shri. K.R. Narayanan along with his wife Usha Narayanan |
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| DAY CARE An average of 13 clients is attending our day care services from September 01, 2004. Characteristics of beneficiaries who are availing the service: Gender: Male : 5 Age: Male : Av. within the group of 65-90 years |
| ACTIVITIES IN THE DAY CARE CENTRE | |
| » | Prayer |
| » | Light exercises |
| » | Listening to music, watching TV |
| » | Newspaper & book reading, |
| » | Gardening |
| » | Recreational & Educational activities. |
| » | Indoor games like chess, caroms, cards, ball passing, bowling etc. |
| » | Activities like drawing, painting, stitching, clay modeling etc. |
| » | Using life story books. |
| » | Aromatherapy: This involves making the patients smell spices, leaves and other materials, which may invoke pleasant, old memories thereby enhancing the faculty. |
| » | Orientation sessions. |
| » | Photographs of events are also displayed at the center. |
| » | Reminiscence therapy |
| DOMICILARY CARE SERVICES On an average, now we are providing domiciliary services to 81 clients. Community Geriatric Nurses, CGN students and the newly identified community workers provide the care services. The nurses visit each person with dementia once in a fortnight. These visits help to increase social interaction, to educate caregivers, to provide counseling and to provide necessary nursing care for the patients. |
| MEMORY CLINIC The memory clinic in Indira Gandhi Co-operative Hospital, Kadavanthra, Cochin, is functioning every day from 10.00 a.m. to 1.00 p.m. To apprise the facility of memory clinic, frequent visits by officials are made to nearby hospitals and clinics. |
| GERIATRIC CARE TRAINING PROGRAM In the academic year 2004 – 2005, 12 students underwent this training course. The duration of the course is 10 months. The syllabus for the course covers general nursing, community health and welfare and more specifically the challenges of geriatric nursing in the field of dementia. The Christian Medical Association accredits the course. |
| AWARENESS PROGRAMMES Regular awareness lectures about dementia are conducted in schools and colleges. Members of Kudumbashree, Anganwadi and other community workers were also included in the program. Notices, brochures, newsletters and other publications are distributed at frequent intervals among public. Also wide publicity is given through mass media. BPL Help lines are extensively used for dementia awareness programs. |
| CARE GIVERS’
MEETING We organize caregivers’ meetings at regular intervals. The meetings are conducted for the caregivers at the dementia care center. Formation of Support Group was discussed in the last meeting in addition to normal discussions. Such Support Group could act as care givers and offer their services working in the field of dementia. |
| GUIDANCE AND COUNSELING Counseling is provided to care givers on regular basis. Caregivers are encouraged to discuss their experiences while staff and Psychiatrist offer constructive advice at these meetings. |
| RESEARCH ARDSI launched the project in September 2004. Under the guidance of Dr. K Jacob Roy, Chairman ARDSI, Dr. S Shaji, Consultant Psychiatrist, ARDSI, and Dr. Mathew Abraham, Consultant Neurologist, ARDSI, a research program commenced with an aim to find out the prevalence of Dementia cases in Cochin Corporation, Ernakulam District. The research team includes10 community workers surveyors), 5 Community Geriatric Nurses lead by Ms Hena, the care manager. Sqn. Ldr. K. A. R. Nair (Rtd), Chief Co-Coordinator & Treasurer of ARDSI monitors the progress of the survey on a weekly basis. The community workers were identified and trained to conduct the survey. Their efficiency in conducting the survey as well as their willingness and ability to provide community care to the patients of dementia is being evaluated periodically. |
| Summary: Population screened 4899 Cases identified 125 Clients in day care 13 Clients availing home care 81 Total availing our services 94 |
| DEMENTIA CARE FUND Concerted efforts are made to generate funds for dementia care services. Our main source is from funding agencies and donations. Committees have been formed to achieve better results. |
| DEMENTIA CARE CENTRE AT KUNNAMKULAM : RESPITE
AND DAY CARE SERVICES ALZHEIMER’S
AND RELATED DISORDERS SOCIETY OF INDIA |
| HARMONY HOME |
| A.R.D.S.I. is proud to announce that the first Dementia Respite Care Centre in India has started functioning at the above-mentioned address. |
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| The Centre provides the following facilities: - | |
| » | Round the clock nursing care by geriatric nurses |
| » | Medical care |
| » | Occupational and physiotherapy |
| » | Group activities |
| » | Information and counseling |
| » | Day Care |
| Range of activities: | |
| » | Prayer |
| » | Listening to music |
| » | Reading newspaper |
| » | Watching TV |
| » | Gardening |
| » | Reminiscence therapy |
| » | Aroma therapy |
| » | Games and picnics |
| » | Interacting with children |
| » | Rearing pets |
| » | Drawing and painting |
| Food (both Veg. And NV) shall be provided. | |
| » | Morning tea/coffee |
| » | Breakfast |
| » | Lunch |
| » | Evening tea and snacks |
| » | Dinner |
| Medical care | |
| » | Medical Officer |
| » | Visiting Psychiatrist |
| » | Neurologist and clinical Psychologist shall provide necessary medical help |
| In Association with: Mr. A.G. Thomas& A.G. Thomas Memorial Trust |
| Visiting International Faculty: |
| Josephine Hague, Dementia Care Manager-Cornwell
Age Care, UK Jean Bedells-Gerentologist, Colarado, USA Pip Sutcliff-Sr. Occupational Therapist, Bristol, UK Dr. Jeff Morgan – Consultant Psychiatrist, UK |
| Supported by a matching grant from: |
| Rotary Club of Kunnamkulam (District 3200) Rotary club of Boulder; Colarado, USA (District 5450) & Rotary Foundation |
| We are negotiating with the Ministry of Health, Govt. of India & Help Age for support. |
| Net working with service organizations, Nursing colleges, Psychiatrists, Neurologists, Social workers and Psychologists for providing better care facilities to the people with dementia. |
| Appeal: We seek your funding support. Please help us with generous donations. |
| Note: For details regarding admission please contact the Program Officer with all relevant information. |
| I WISH TO SUPPORT ARDSI… | |
| » | I wish to become a volunteer. |
| » | I wish to share my professional time and knowledge to help the victims and their families. |
| » | I wish to help ARDSI in setting up Chapters and support groups. |
| » | I wish to become a Life Member by paying Rs.1,000/- |
| » | I wish to sponsor a person with Dementia |
| For day care for one month by paying Rs.2,000/- | |
| For Respite care for one month by paying Rs.6,000/- | |
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